Join Kaitlyn in the fight against Neurofibromatosis!
Neurofibromatosis is a genetic chromosome disorder that effects the nerves. NF can cause tumors to grow anywhere on the body at any time. Neurofibromatosis can also cause learning delays, hearing and vision loss, cancer, deformities in the bones, epilepsy and much more. Kaitlyn was diagnosed when she was an infant. At age eleven she has four lesions on the inside the layers of her brain, one lesion on the outside of her skull, one between her brain and her skull in the back of her head, one between the hemispheres, and one in her hip. NF has challenged her with learning delays and epilepsy. She receives physical therapy, occupational therapy, speech and resource assistance in school. In addition to the many doctor visits throughout every year, she usually has an MRI and\or EEG annually. She is very lucky that neurofibromatosis has not become terminal. NF research will benifit Kaitlyn and her family greatly. Please help Kaitlyn spread the awareness of NF, as she struggles in her fight against neurofibromatosis.
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