ENT-perfect hearing!
lesion on hip-the lesion has grown, but in perportion to Kaitlyn's growth which is ok. We are watching one leg to grow faster then the other. This is common for NF kids.
Genetics-learning difficulties are from the missing chunk of the #17 chromasome. This also proves she does indeed have neurofibromatosis. We are watching for problems in the teeth. This is common in NF children. She has several cafe au lei spots, but the fibroma spots are multiplying. They are filled with hystamine, therefore they are itchy. This is why the are often scratch marks around them.
Neuropsychology-there are 3 layers of the inner part of the brain. Kaitlyn has at least one lesion on each layer. The lesions are causing "roadblocks" for everything that enters her brain. This is way she may say "rose" instead of "daisy". She can get something close to what she is trying to say. We are also seeing signs of damage that was done to her brain during seizures from when she was a baby. Learning is going to be a lot harder than originally thought. We are focusing on basic math and reading. She has been enrolled into a local college reading program as recommended by her doctor. We hope that we can find a method of reading that Kaitlyn can relate to. More test are being done to determine if she has dyslexia.
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